About Us

Renal Agenesis UK is a UK-based baby loss charity founded in 2019 to support parents and families after their child has been diagnosed with Bilateral Renal Agenesis.

Bilateral Renal Agenesis is a condition which most people have never come across and most pregnant families have never heard of until they receive the devastating news that their baby has the condition.

Renal Agenesis UK are here to provide information and support about bilateral renal agenesis and the implications this diagnosis will have for their family and their child.

We are a small organisation run by families who have experienced the loss of a child to bilateral renal agenesis and understand the shock, the questions and decisions which are made for your child.