Renal Agenesis UK Privacy Policy

                Scottish Registered Charity SCIO SC051280

 

At Renal Agenesis UK we are committed to protecting your personal data and respecting your privacy.

This policy will explain when and why we collect some personal information, how we use that information, the situations where we may have to disclose it to others and how we keep it secure.

When you provide us with your personal information you are agreeing to this policy and consenting to our collection and use of that information as set out in this policy. We may be required to update this policy at any time without notice to you, so please check it regularly.

 

How we collect your personal information and why do we collect it?

  1. What information do we collect? 

 

Information we collect varies depending upon your interaction with Renal Agenesis UK. This interaction may be via our website, contacting us or fundraising on our behalf.

 

This information could include (but is not exclusive to) your full name, date of birth, email address, postal address and telephone number.

 

Renal Agenesis UK does not hold any banking details; but we will hold information relating to donation dates, monetary values and if donations were for a specific reason, such as ‘In memory of’.

 

We may also collect details of your visits to our website. This may include, but not limited to, traffic data, location data, web blogs and other communication data. All the forms and transactions on this site comply with data protection requirements (GDPR, Data Protection Act 1998 (DPA)).

 

 

 

Sometimes your personal information comes to Renal Agenesis UK via online fundraising platforms such as JustGiving, Paypal Donate etc. These third parties will ask you whether you are happy to be contacted by us and we will not use your information to contact you without explicit permission given by you via these sites.

 

When we ask for your personal information, we give you the option to opt out of communications via email. To do so please contact us at info@renalagenesis.org.uk

 

We will never sell your personal information to any other organisations.

 

We may also obtain personal information from you when you ask for information, register with us, send or receive an email, make a donation or otherwise provide us with personal information. All information collected is processed in accordance with our legal requirements and the General Data Protection Regulation (GDPR).

 

  1. Why do we collect your information? 

 

We collect the information you provide to:

 

  • Respond to your requests – such as donations, Gift Aid, fundraising events and information regarding Renal Agenesis UK that you have made enquiries about, including support groups.
  • Manage your purchase orders and communicate with you about those orders.
  • Record any contact we have with you.
  • Keep you up-to-date with Renal Agenesis UK news such as fundraising campaigns, managing of the charity, achievements etc, but only if we believe this falls under the category of legitimate interest to you, in line with GDPR guidelines.
  • Keep you up to date with new developments regarding Renal Agenesis UK and its progression.
  • Prevent or detect fraud or abuses of our website and to enable third parties to carry out technical, logistical or other legitimate functions on our behalf.

 

Renal Agenesis UK will never swap or sell your details. When dealing with your personal information we will always comply with the General Data Protection Regulation and any other applicable legislation.

 

  1. How do we protect personal information? 

 

We take the security of your information very seriously and have put appropriate measures in place to minimise the risk to your information from loss, theft or misuse.

 

These include:

 

  • Restricted access control to only those who require access to your information.
  • Taking measures to ensure the information provided is accurate, up-to-date and kept only for as long as is necessary for the purposes to which you have given consent.
  • We have contractual agreements between working partners (e.g. third party donation collectors for payment transactions) that require compliance with the Fundraising Regulator and the Information Commissioners Office, GDPR, Data Protection Act 1998 and all applicable legislation.
  • Your information is only accessed by the board of Renal Agenesis UK and the registered data controller for the charity.

 

  1. Links to third party websites 

 

When accessing other websites via a link on our website please ensure you read their privacy policy. A third party website is independent from Renal Agenesis UK and we have no say in how they manage your personal information that is collected from their website.

 

  1. Social media sites 

 

This policy covers how we will use your information from social media pages that you visit but you will also need to read how the providers of the social media websites will use your information. Please ensure you read their Privacy policy before sharing data and make use of their privacy settings and reporting mechanisms to control how your data is used.

 

 

  1. Do we share your information?

 

We will not sell or rent your information to third parties.

 

We will not share your information with third parties for marketing purposes.

 

There are some circumstances where we may need to share data. For instance:

 

  • If we are legally required to do so, e.g. court order, law enforcement agency pursuing an investigation.
  • If we believe it necessary to protect or defend our rights, property or the personal safety of our personnel or visitors to our premises or website.
  • Information has to be sent to HMRC as part of the declaration process for Gift Aid so that we can reclaim the Gift Aid on your donation(s).

 

  1. Your data protection rights

 

Under data protection law, your rights included:

 

Your right of access – You have the right to ask us for copies of your personal information.

 

Your right to rectification – You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

 

Your right to erasure – You have the right to ask us to erase your personal information in certain circumstances.

 

Your right to restriction of processing – You have the right to ask us to restrict the processing of your personal information in certain circumstances.

 

Your right to object to processing – You have the the right to object to the processing of your personal information in certain circumstances.

 

Your right to data portability – You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

 

 

 

  1. Right of access

 

You have the right to ask for a copy of the information we hold about you, why we hold your data, how it is processed and to have any inaccuracies in your information corrected.

 

To request this information, send a request email to the Founder and Chairperson Gillian Wilkinson at info@renalagenesis.org.uk or contact us via our website www.renalagenesis.org.uk/contact

 

Please note Renal Agenesis UK has 30 days to respond to your request.

 

 

 

  1. Right to be forgotten

 

You have the right to have your data permanently erased. This will also apply to third parties and does not require a formal withdrawal of consent.

 

 

  1. Contact details 

 

If your personal details change, please help us to keep your information up-to-date by notifying us.

 

If at any time you’d like us to change the way we contact you, or if you would like to opt out of our communications altogether please contact us:

We will only email if we have your consent to do so, but if you receive anything you would rather not, please let us know. We include an unsubscribe option within every mass email message we send so you are always in control of what you receive.

There are also details of how to opt out of our mailings such as our newsletter.

If you receive a mailing you do not want, please let us know so we can update your communication preferences. This will help us to ensure we only ever send you materials that you would like to receive.

 

 

  1. Your consent

 

By providing us with your personal information you consent to the collection and use of the information you have provided in accordance with the above purposes and this Privacy policy.

 

 

  1. Photography 

 

All photography on this site is reproduced with kind permission of the photographers concerned.

 

 

  1. Information 

 

All information published on this site is provided to the best of our knowledge. You may print out any page on this site for your own information, but you may not sell it, reproduce it on the internet, alter it, or reprint it in any publication without permission from our founder and Chairperson, Gillian Wilkinson.

 

 

 

  1. Complaints 

 

If you have a complaint or any concerns about Renal Agenesis UK use of your personal information, you can make a complaint, please email us at info@renalagenesis.org.uk

 

Alternatively you can also complain to the ICO if you are unhappy with how we have used your data.

 

The ICO’s address:           

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

Helpline number: 0303 123 1113

ICO website: https://www.ico.org.uk

 

 

This policy was last updated on 6th September 2022